World Lupus Federation

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World Lupus Federation Global Survey of People Living with Lupus Finds 87% Report at Least One Major Organ Affected by the Disease

In a recent international survey, the World Lupus Federation found that 87% of the survey respondents living with lupus reported that the disease has impacted one or more major organs or organ systems. Over 6,700 people with lupus participated in the survey from over 100 countries.
Highlights from World Lupus Day 2022

Check out some highlights from another successful World Lupus Day in 2022!
Get ready for World Lupus Day 2022!

World Lupus Day 2022 is just around the corner! Get ready to help spread awareness about lupus by sharing messages on your social media channels to educate family members and friends about the impact lupus has on millions of lives around the world.
Building a Better Future for People with Lupus

The World Lupus Federation is proud to represent the lupus patient community in a new collaboration to set the bar for what quality care looks like and create a better future for patients living with lupus.
Global Survey: The Impact of Lupus on Organs

Members of the World Lupus Federation are conducting a global online survey to better understand the impact of lupus on the body’s organs.
World Lupus Federation Global Survey of People with Lupus Finds Half of Respondents Experienced a Decrease in Access to Healthcare During COVID-19 Pandemic

Over one third of survey respondents living with lupus were unable to access the COVID-19 vaccine earlier than the general population
Global Advisory Committee Identifies Solutions for Addressing Top Lupus Barriers

The Addressing Lupus Pillars for Health Advancement (ALPHA) project is a unique global consensus initiative that seeks to identify and prioritize the fundamental barriers or knowledge gaps that will allow providers, researchers and scientists to improve diagnosis, treatment and systems of care for people with lupus.

Rallying Lupus Groups Around the World

The World Lupus Federation collaborates with approximately 250 lupus groups in 75 counties on six continents. We empower people with lupus to speak out about their diverse needs, and for their family members and caregivers.

We harness the power of patient voices to build empathy for those affected by lupus and stimulate support for additional public and private funding for lupus research and patient services.

By elevating awareness of the physical, emotional and economic impact of lupus in their countries, World Lupus Federation member organizations effectively fulfill their role as advocates on behalf of people with lupus worldwide.

Use the menu located at the top of each page to learn more about the mission, priorities and activities of the World Lupus Federation.

Recent News

A Clinical Trial for People with Discoid and/or Subacute Cutaneous Lupus Erythematosus (DLE/SCLE)

by World Lupus FederationJune 8, 2022June 9, 2022

Study Title: A Study to Evaluate Efficacy and Safety of BMS-986165 in Adults With Active Discoid and/or Subacute Cutaneous Lupus Erythematosus (DLE/SCLE) – IM011-132 Sponsor Name: Bristol-Myers Squibb (BMS) Purpose of Study: The purpose of this study is to see if a study medication…

World Lupus Federation Global Survey of People Living with Lupus Finds 87% Report at Least One Major Organ Affected by the Disease

by World Lupus FederationMay 12, 2022June 14, 2022

In a recent international survey, the World Lupus Federation found that 87% of the survey respondents living with lupus reported that the disease has impacted one or more major organs or organ systems. Over 6,700 people with lupus participated in the survey from over 100 countries.